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In Memory Of
Caylee Marie Cepero
2000 - 2005
Full NameCaylee Marie Cepero
Born3rd September 2000
Passed Away8th March 2005
Age
4 Years

Intro text

Caylee was 4 yrs old when she passed and was completely full of life. There was never a bad moment, never a bad memory, except the one where she died. Caylee comes from the word Katherine, meaning - PURE - and she sure was. All of my children had an upper respitory infection and had been to the doctor's the week prior and put on Zithromax. She was over the cough and on day 7 of the treatment, she got a 99.1 fever(Thursday March 3, 2005,). She was still acting like a healthy kid. We had been for a field trip to the Fire Station the day before. On Friday, she had begun vomiting. I thought it was a stomach virus. Saturday, she had stopped vomiting, was dry heaving and not keeping anything down, I took her to Healthpoint After Hours Pediatrics. They diagnosed it as a Stomach Virus. I let her sleep Sunday except when she wanted to go to Church, she ate some breakfast, but was tired because of the Promethazine they had given her. Monday morning she looked worse, we took her to her Pediatrician about 9am. He immediately diagnosed it on sight as Leukemia, Monday, March 7, 2005. We were devastated. He said, "This is not a Death Sentence like it used to be." We took her to the Children's Cancer Center and they aspirated blood from her marrow and diagnosed it as ALL with a 80% chance of survival, this was the initial early diagnosis. The next morning the final results came in and it was not ALL, but AML and now the prognosis was 40% with Chemo and 65% with a Transplant. My whole world seemed to end at that moment. The Oncologist gave us her road map and said it would mean 10 days of Chemo and then more treatments lasting 2 1/2 years and then she may relapse and need a bone marrow transplant and could eventually die. With 20 years + of experience, they had never seen or expected anything like this. Her WBC was 283,000 and when they started Leukopheresis, a treatment that cleans out all unnecessary white blood cells. Her count came down momentarily to 190,000 and then went back up to 220,000 with an hour left of the treatment. Her heart rate was now at almost 200, they had to put a ventilator in and they explained that we could lose her. They had to resuscitate her twice, 2 minutes and back on Support. She was not clotting and I was told she probably was not going to make it through the night. I told them to keep trying. I could not fail her. Our priest, Father Rich from St. Catherine's Episcopal Church was there and he said, "The last bit of love you can give her is to let her go." I knew he was right when the bags of blood they were putting in to stabalize her started coming back out. She was bleeding to death, so we had to make a decision to let her go before she did. The Hematologists said that it would be far worse if that happened. I could not bear to do that to her. So, I told them to disconnect her and give her to me. I held her for a long time. I touched her little feet and hands and rubbed her tummy that had hurt so much and kissed her over and over again. I told her that I was so sorry that this happened to her and that I loved being her mommy and that I was lucky to have had that opportunity. She died at 8:13 pm on Tuesday, March 8, 2005. In November, her class made cards for Thanksgiving. Caylee's card said she wanted to thank Papa for taking her fishing, mommy for buying her things and Jesus for giving her TV. The last thing she said to us just a couple of hours before she passed was, "Papa, I want to watch TV." I want to think that Jesus was standing there telling her whenever she was ready to go home just say it. I think it was her way of saying to us she was ready. She closed her eyes and did not open them or ever speak again. I truly believe she was already gone. Two Foundations have been formed, Caylee's Hope Foundation, http://www.cayleeshope.com raising awareness and money for research into Childhood Cancer causes and cures and the Caylee's Heart Foundation, http://www.cayleesheart.org benefiting families who have or have lost a child with cancer; touching the hearts of those touched by childhood cancer.     Kenny Chesney was kind enough to wear the Caylee's Hope/Caylee's Heart awareness wristband on his left arm at the Tampa show.  He is pictured here singing, "Who You'd be today" Thank you Kenny for wearing the wristband, it means a lot to me.Both foundations are on each one on the opposite side.If you would like a bracelet, please make a donation to Team Caylee's Hope and then email [email protected] requesting a bracelet.Thank you for your support!!!!  The proceeds benefit the Leukemia Lymphoma Society. News Articles - Washington Post -Click HereChristian Science Monitor - Click HereCanton Rep -Click HereMountain Times - Click HereHigh Country News - Click Here  Ali FamilyUpdate on Danyal, He received his Bone Marrow transplant and is doing well.  His mother was his donor. The Hospital has agreed to accept $350,000 and has made it possible for the balance to be due after the completion of the procedure by the end of November. The family still needs help with this enormous financial strain, the fundraising efforts are so appreciated.  balance of $150,000. If you would like to make a donation, click here.; www.active.com/donate/danyal  Thank you! Tungol FamilyPaul Tungol, I am happy to report is doing well, however we are still trying to raise the funds towards his BMT should he need it.  This is a very poor country and the average annual salary there is approx. $3200 US Dollars.  Please Help!  Thank you! www.active.com/donate/tungol. Every child deserves the chance Caylee didn't have. To authenticate:Name: Baguio General Hospital Medical Center (BGHMC)Address; Campo Sioco, Baguio City , Philippines, Zip Code: 2600Telephone Number: +63744448299
04 Aug 2006
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Sis Nash
08 Mar 2015

I would like to send condolences to the family on the anniversary of your daughter’s death. It's sad to see this happen to someone so young, and with so much to look forward to. Take comfort in knowing there is a God who cares. Notice the promise Jesus holds out to all at John 5:28, 29 "do marvel at this, because the hour is coming in which all those in the memorial tombs will hear his voice and come out, those who did good things to a resurrection of life …” God promises to restore our earth to a paradise and he yearns to bring back to life on earth those who have died.(Job 14:14,15) Only then will Caylee reach her full potential in a world free from all form of tragedies and death. You can look forward to the day when you can hold and embrace your loved one again. No bond is as great as that between a parent and a child. While I understand there is nothing that will take away the pain completely, but there is so much comfort our heavenly father gives to us to ease the pain and emotional trauma we go through, such as the resurrection hope mention at John and also at Revelation 21:3,4 where man's enemy death will be gone forever.

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Terry J.
12 Dec 2014

As I was reading about Caylee, I wanted to say I was sory to hear about the loss of Caylee, she was such a beauiful little person, God looks at children as precious. Never do he want to see his precious ones leave their parents and for that reason he has given us hope, yes comfort to know we will see our love ones again. What if you can see Caylee again? yes he promises that you can see her again, I can see my sister again, I found comfort in John 5:29, John 11:25, I hope you can find comfort in those scriptures and many more. Look in our website JW.org you can found so many comforting things in there. May you find comfort in the God of peace.

flower20 Jul 2013

jodi

"you are an angel"

flower08 Jul 2013

lupe zamora

"She,s an angel and with OUR LORD GOD Bless you"

flower01 Aug 2010

Lea shook

flower30 May 2010

VALKIRIA

"pues a pesar de que no te conoci solo quiero decir que eres un hermoso engal bendito en el cielo"

flower25 May 2010

mandy ringwood

"i left you a flowere 4 years ago and came back to visit xxx"

flower12 May 2010

Shirley DiRupo

"A beautiful child, now with the Lord"